{"id":14,"date":"2024-05-13T01:18:29","date_gmt":"2024-05-12T15:18:29","guid":{"rendered":"http:\/\/jafa.org.au\/portal\/?page_id=14"},"modified":"2026-03-11T13:48:22","modified_gmt":"2026-03-11T02:48:22","slug":"info-and-evidence","status":"publish","type":"page","link":"https:\/\/jafa.org.au\/hcphub\/info-and-evidence\/","title":{"rendered":"Info & Evidence"},"content":{"rendered":"\n
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Info & Evidence – Resources<\/h2>\n\n\n\n

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Reports<\/h3>\n\n\n\n
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Impact Study<\/h3>\n\n\n\n

JAFA\u2019 s 2023 national IMPACT Study report documents the significant burden of pain, physical limitations, mental and emotional distress, social isolation, poor quality of life, lost educational opportunity, and financial costs attributable to juvenile idiopathic arthritis and related childhood rheumatic diseases.<\/p>\n\n\n\n

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AJAR Report 2024<\/h3>\n\n\n\n

The Australian Juvenile Arthritis Registry (AJAR) is a minimum dataset registry for 0-24yr olds with juvenile idiopathic arthritis and related childhood rheumatic diseases. It was initiated by JAFA and established in 2023 under a three-way partnership between JAFA, the Australian Paediatric Rheumatology Group, and the A3BC Arthritis and Autoimmune Biobank. This Inaugural Report (2024) provides information on the first 300 registrants.<\/p>\n\n\n\n

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Australian Institute of Health and Welfare report: Juvenile Arthritis<\/h3>\n\n\n\n

This 2023 AIHW report presents information on the estimated prevalence of juvenile idiopathic arthritis, its treatment, management, outcomes, economic impact and burden of disease. It also contains information about the paediatric rheumatology workforce.<\/p>\n\n\n\n

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Journal Articles<\/h3>\n\n\n\n
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Juvenile idiopathic arthritis – a new outlook<\/h3>\n\n\n\n

This 2023 article, by Australian paediatric rheumatologists, describes the diagnosis, subtypes and medical management of juvenile idiopathic arthritis. It also provides an overview of available medications and emphasises the improvements in patient outcomes in recent years.<\/p>\n\n\n\n

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The impact of time to diagnosis on health service use, cost, and quality of life for patients with juvenile idiopathic arthritis: a cost-utility analysis<\/h3>\n\n\n\n

Timely diagnosis of JIA ensures early treatment to minimize long-term joint damage and disability. This Australian study, led by Dr Amy Von Huben, investigated the impact of earlier diagnosis of JIA and showed that quality of life was better and annual healthcare costs were reduced by over $10,000 per child due to reduced hospitalisations for pain, inflammation, and investigative procedures.<\/p>\n\n\n\n

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Standards<\/h3>\n\n\n\n
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APRG 2023 Updated Standards of Care for Children and Young People with Juvenile Idiopathic Arthritis <\/h3>\n\n\n\n

This 2023 document by the APRG outlines currently recommended standards for the clinical care for children and young people with juvenile idiopathic arthritis. It outlines guiding principles and quality statements in seven different domains of care.<\/p>\n\n\n\n

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Info & Evidence – Resources Reports Impact Study JAFA\u2019 s 2023 national IMPACT Study report documents the significant burden of pain, physical limitations, mental and emotional distress, social isolation, poor quality of life, lost educational opportunity, and financial costs attributable to juvenile idiopathic arthritis and related childhood rheumatic diseases. AJAR Report 2024 The Australian Juvenile […]<\/p>\n","protected":false},"author":1,"featured_media":701,"parent":0,"menu_order":8,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-14","page","type-page","status-publish","has-post-thumbnail","hentry"],"acf":[],"yoast_head":"\nInfo & Evidence | Latest Research on JIA<\/title>\n<meta name=\"description\" content=\"Access reports, journal articles and standards of care to support informed decision making in the treatment of juvenile arthritis.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/jafa.org.au\/hcphub\/info-and-evidence\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Info & Evidence | Latest Research on JIA\" \/>\n<meta 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